Newly disabled would like info

Dec 23, 2012
15
4
colchester
MH
van conversion
Exp
40 yrs
Hi i find myself increasingly more relient on a wheelchair due to my MS and our I.H. motorhome (PVC) which we love is now not working for me very well so decided to buy another Fiat PVC and have it converted to our needs. It is a very time consuming job finding out whats available out there! We have an appointment to visit Coachbuilt GB but would like as much info as possible.. As the steps are now extremely difficult for me i am trying to find out ways of getting into the van. I know of the power step but we have no storage for it in this van. Guess the new van will have a wheelchair lift but its not always possible to use them! I have seen on line a transfer seat that fits onto bottom of passenger seat and takes you to the top (electric). Does anyone use this? I have thought of a hoist running along centre of roof but not sure if it could be used if i sat on the side floor area? would love to hear about how others manage to get in and move around inside their panel vans??
 
OP
J
Dec 23, 2012
15
4
colchester
MH
van conversion
Exp
40 yrs
Thanks a lot for your suggestions, very helpful, have approached brookmiller and have emailed Murvi a week of so back but no response as yet and they are a bit far from us but their web page was interesting may make inroads into trying to contact the writer of the report sent to MMM seems he uses a hoist to get his wife onboard so that could be one answer. Thanks again all.
 
Jan 2, 2017
531
526
Norfolk
MH
Autocruise Starspirit
Exp
7 years
Hi i find myself increasingly more relient on a wheelchair due to my MS and our I.H. motorhome (PVC) which we love is now not working for me very well so decided to buy another Fiat PVC and have it converted to our needs. It is a very time consuming job finding out whats available out there! We have an appointment to visit Coachbuilt GB but would like as much info as possible.. As the steps are now extremely difficult for me i am trying to find out ways of getting into the van. I know of the power step but we have no storage for it in this van. Guess the new van will have a wheelchair lift but its not always possible to use them! I have seen on line a transfer seat that fits onto bottom of passenger seat and takes you to the top (electric). Does anyone use this? I have thought of a hoist running along centre of roof but not sure if it could be used if i sat on the side floor area? would love to hear about how others manage to get in and move around inside their panel vans??
Hi June, sorry to hear about your MS progression. Sue has PPMS and I have adapted our 6 metre coach built Autocruise Star Spirit. We use an Autochair Milford hoist to get Sue into the passenger seat. You can google it. We bought it on eBay for £350 and it cost about £400 to fit. We have a transfer stand to transfer Sue to a wheel chair which I can push the length of the van. I use a false flloor and the transfer stand to get Sue on to the loo which is also the shower. We get away a lot. We tow a trailer with a TGA Breeze and a small Pride Apex Rapid. Sue has an indwelling catheter which makes life much easier for me. Please feel free to ask any more questions or to give any suggestions. Martyn.
 

meanders

Funster - Life Member
LIFE MEMBER
Jun 28, 2008
878
591
Ipswich, Suffolk
MH
C class
Exp
Since 2004
June. Given your location you might chat to Ransomes mobility in Ipswich. They specialise in cars but also do bigger stuff and may be able to help.
 
OP
J
Dec 23, 2012
15
4
colchester
MH
van conversion
Exp
40 yrs
Sorry for delay in reply but been away for few days. Thanks Martin nice knowing the autochair would fit a van thought they were for cars. Did not know about transfer stands so will consider that and will keep ransome in mind. As a short term thing have bought on gumtree a bath chair lift which works well sitting on floor inside sliding door and considering ceiling hoist for new van. Thanks to you all again
 
Jan 2, 2017
531
526
Norfolk
MH
Autocruise Starspirit
Exp
7 years
Hi June, we started off with a bath chair off eBay, and then our wonderful OT got Sue an ELK which is an emergency inflatable cushion for when she falls. It's brilliant and I have picked her up many times. BTW we are on the paleo diet with DR Terry Wahls and Sue has responded remarkably, losing her brain fog and tiredness. We are gluten and dairy free and have learnt so much about the gut and MS. Terry Wahls was comatose in a recumbent wheel chair and now cycles 20 miles a day and lectures all over the world about food as medicine. Best wishes. Martyn and Sue.
 
OP
J
Dec 23, 2012
15
4
colchester
MH
van conversion
Exp
40 yrs
Well I never you also starting off with a bath chair! I must do some enquiries about that ELK never heard of one and it would have been wonderfull recently when I fell in the motorhome and cracked my pelvis Richard had such a job lifting me up in such a confined space. Getting on okay but can not get into the motorhome without the bathchair. Its very interesting about that diet I am going to google it today! Went gluten free a year ago and that made some difference. Thanks martyn you have given me much to think about very gratefull to you. I googled your motorhome and its the identical layout to ours only bigger! we have an I.H end lounge. Still I wonder how sue manages to get into the bathroom? or have you adapted the door?
Thanks again for all the info
 
Jan 2, 2017
531
526
Norfolk
MH
Autocruise Starspirit
Exp
7 years
Well I never you also starting off with a bath chair! I must do some enquiries about that ELK never heard of one and it would have been wonderfull recently when I fell in the motorhome and cracked my pelvis Richard had such a job lifting me up in such a confined space. Getting on okay but can not get into the motorhome without the bathchair. Its very interesting about that diet I am going to google it today! Went gluten free a year ago and that made some difference. Thanks martyn you have given me much to think about very gratefull to you. I googled your motorhome and its the identical layout to ours only bigger! we have an I.H end lounge. Still I wonder how sue manages to get into the bathroom? or have you adapted the door?
Thanks again for all the info
Being a tight Yorkshire man, we first tackled the access through the shower door. Ours has the door and wall running parallel with the inside of the van. We got our local dealer to hinge the entire wall so that the whole wash room is exposed for entry. Then, the next problem was how to get Sue from the corridor onto the loo. I used some substantial interlocking seed trays which are the same height as the lip of the shower tray. They sit in the corridor, I can then use Sue's transfer stand to sit half in the washroom and spin her onto the loo. Hope this makes sense. I can shower Sue and then transfer her to her w/c. Having MS has brought us much closer together and we often go away in the van. How about you?
 
Jan 2, 2017
531
526
Norfolk
MH
Autocruise Starspirit
Exp
7 years
Terry Wahls MD
27 May 2015 ·


From Wahls Warrior Michelle
Many of my health issues have been eliminated and/or have improved due to the Wahls Protocol. Blindness and double vision all gone, balance, leg function, neuropathy pain gone, numbness and tingling gone, my mouth was numb and was unable to taste all gone, energy was so low could barely even shower or feed myself, now I'm back to normal levels and can walk 2 miles. Right arm and hand didn't work well, all gone. Last 2 MRIs stable and one shows reversal of damage. Have been doing protocol 100% for 2 years + Just finished school for holistic nutrition as I was inspired to share the healing power of food!!
For more details on the diet and program Wahls Warriors are using please see www.terrywahls.com
This is the Lady Doctor with PPMS who's book we follow.
 
OP
J
Dec 23, 2012
15
4
colchester
MH
van conversion
Exp
40 yrs
Thanks martyn for info much appreciated am looking into the diet sounds good think i would like to give it a go if i can persuade Richard! Had never heard of that lifting cushion would be a god send if I fell and i did go through a patch when if fell often but my O/T never mentioned it! Phoning Autochair tomorrow to see about a home demo might just be what I need in the new van.
 
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