Has anyone here been diagnosed with Fibromyalgia. I could do with chatting to them.
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It's really important to take the steroids as advised ( I'm not saying you don't!). If it is PMR and untreated a complication can be temporal arteritis which can lead to very severe complications including sudden loss of sight. The steroids can cause an increase in eye pressure so worth mentioning at your next eye test and maybe bringing it forwards ask your optometrist for their advice.Still waiting to find out, my doctor put me on a high dose of steroids a few months ago as he was not sure if my symptoms are Polymyalgia or Fibromyalgia as they are very similar.
Another thing that threw him out was when they checked my inflammation markers they had more than trebled since taking the steroids that should have reduce them!!
The steroids have helped as I am not aching so much from my upper body but still bad on lower body.
Another issue is that the steroids seem to have pushed up my sugar levels near to a diabetic level
Now on monthly blood test to monitor what’s going on.
Also have an advanced stage of MGUS so that’s not helping
Still always someone worse off than me so just keep going best you can![]()
Has anyone here been diagnosed with Fibromyalgia. I could do with chatting to them.
This is why I would like any information from those who know the most about it.I don’t want to diminish anybodies experience of FM but I think a lot of folks get ‘diagnosed’ as a bit of a catch all in the absence of any other measurable medical explanation. As those affected will know, there is no definitive test for FM and symptoms vary widely. For some it’s an occasional flush of mild symptoms while for others is utterly debilitating.
The good news is that folks can and do make a full recovery but I think a strong focus on positive mental health and lifestyle is as important as any pills you might be prescribed.
I think talking to others can have mixed results, depends who you talk to!
This is why I would like any information from those who know the most about it.
The diagnosis of FM can be a cant find a reason so diagnose FM
My wife has it and she chats on a Fibromyalgia group on lineHas anyone here been diagnosed with Fibromyalgia. I could do with chatting to them.
I don’t want to diminish anybodies experience of FM but I think a lot of folks get ‘diagnosed’ as a bit of a catch all in the absence of any other measurable medical explanation. As those affected will know, there is no definitive test for FM and symptoms vary widely. For some it’s an occasional flush of mild symptoms while for others is utterly debilitating.
The good news is that folks can and do make a full recovery but I think a strong focus on positive mental health and lifestyle is as important as any pills you might be prescribed.
I think talking to others can have mixed results, depends who you talk to!
I’m sorry you feel like that. As you say we all have different experiences. A GP gave me that diagnosis. I’ve reflected a lot on my own experience and how I dealt with it - it was a difficult period in my life. I firmly believe that dealing with it mentally is as important as any other therapy. That’s my personal experience, and it was offered constructively. FWIW I wouldn’t ever tell anybody to ‘snap out of it’ and my comments were intended to be helpful. I won’t make any further comments.FM is indeed very complex and everyone has a different response to it.
With all due respect, your responses amount to telling people to ‘snap out of it’.
Not always possible, I’m afraid.
Hi. I've just joined this group. If you still want to chat, I have had fibromyalgia for 11 years.Has anyone here been diagnosed with Fibromyalgia. I could do with chatting to them.
Ah, ok. It's not easy when you have lots of things going on. I have degenerative disc disease at c3/C4/C5/c6 and L5/S1 and have had my neck fused at 2 levels. I also have bursitis of my hip. Lots of other things going on too so I understand what it's like.Up to now I've had a number of my symptoms diagnosed. I have osteoarthritis in my hip spine and shoulder. Also 2 disks bulged and a few other thing so think I just have a lot of different things going on.